Hello everyone,
Further to the previous announcement, please find below further resources in relation to last nights lecture "The origins and principles of patient & public involvement in research". Allison promised to flag up some resources about patient involvement in industry-led research and in clinical trials units. So here you are:
Evans BA, Bedson E, Bell P et al. Involving service users in trials: developing a standard operating procedure. Trials 2013; 14:219 http://www.trialsjournal.com/content/14/1/219
Jenner MK, Gilchrist M, Baker GC. Practical considerations in improving research through public involvement. Research Involvement and Engagement 20151; 3. DOI: 10.1186/s40900-015-0002-y http://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-015-0002-y
Hoos A, Anderson J, Boutin M et al. Partnering with patients in the development and lifecycle of medicines: A call for action. Therapeutic Innovation and Regulatory Science 2015; 1–11. http://dij.sagepub.com/content/early/2015/04/24/2168479015580384.full.pdf?ijkey=BMyiC3ykhZNg5cd&keytype=finite
From EUPATI – have a look at the case reports:
From INVOLVE:
http://www.invo.org.uk/posttypepublication/public-involvement-in-clinical-trials/
http://www.invo.org.uk/posttypeconference/changing-the-formula-working-directly-with-pharma/
Information from trials units and networks:
http://www.ctu.mrc.ac.uk/our_research/patient_and_public_involvement/
http://exeter.crf.nihr.ac.uk/node/170
www.crn.nihr.ac.uk/wp-content/uploads/primarycare/Breaking%20new%20ground%20in%20PPI.pdf
http://www.ncri.org.uk/wp-content/uploads/2015/09/Dragons-Den-AZ-poster.pdf
Hope this helps!
Susie & Allison