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Susie

Susie Fong Post 1

• 2 December 2015, 9:04 AM • Edited by the author on 4 December 2015, 10:59 AM

Post your IP I questions here

This is the problems forum for questions related to IP I only. Thank you.

Valeria Kovacs

Valeria Kovacs Post 2 in reply to 1

• 17 January 2016, 7:55 PM

Dear Susie and Allison,

I have just realised that my first choice for IP1&2 is not a clinical trial but another type of research study where PPI could be really helpful.

Could you please confirm whether we could use any type of research (other than only CTs) for our assignments?

Kind regards,

Valeria

 

Allison Worth

Allison Worth Post 3 in reply to 2

• 20 January 2016, 1:39 PM

Dear Valeria

Sorry it's taken me a couple of days to get back to you on this - I needed to consult Michelle and Christina.

Yes, it will be OK to use another kind of study. The main principles of the assignment remain the same

Best wishes

Allison

Valeria Kovacs

Valeria Kovacs Post 4 in reply to 3

• 20 January 2016, 8:00 PM

to Allison

Thanks so much for your reply!

KR

Gillian Wallace

Gillian Wallace Post 5 in reply to 1

• 25 January 2016, 7:49 PM

IPI query

Hi Allison/Susie,

As we are to formulate a PPI strategy for a current clinical trial (from personal experience or literature), does this mean we are not expected to write about involvement of patients/public in the research-bid/grant proposal?

Or do we pretend the trial of our choice is brand-new and start from proposal stage?

I imagine the latter is correct, but feel I should check before I waste lots of words on formulating the grant proposal if this is not expected.

Hope this makes sense!

Best wishes,

Gillian

Valeria Kovacs

Valeria Kovacs Post 6 in reply to 5

• 25 January 2016, 9:17 PM

Hi Allison and Susie,

I would like to add a question to Gillian's previous enquiry.

As she says, we will be using a current trial and therefore, it is actually not yet published, as the specifications requires it to be. I have found a study of my interest in the internet, so it is kind of "published" and I will be able to reference it. However, I won't find any paper or have access to the protocol. Nevertheless, I really don't think that we need that level of detail for developing a good PPI strategy. 

I would really appreciate your guidance with this.

Thanks,

Valeria

 

 

Allison Worth

Allison Worth Post 8 in reply to 6

• 26 January 2016, 8:52 AM

Hi Valeria

That's fine - a reference so the person marking the paper can trace the study in question is all that's needed. You're quite right, you don't necessarily need access to a protocol or publication to develop a PPI strategy

Hope that helps

Allison

Valeria Kovacs

Valeria Kovacs Post 13 in reply to 8

• 27 January 2016, 5:38 AM

to Allison

Hi Allison,

All your recent posts are really helpful!

thanks so much,

Valeria

Allison Worth

Allison Worth Post 7 in reply to 5

• 26 January 2016, 8:49 AM

Hi Gillian

Thanks for your query. You'll  see from Unit 2 lessons that a good patient and public involvement strategy involves patients/the public as soon as possible, so involving them at the proposal stage is good practice. So yes, imagine that you are planning the study and think how you would involve patients at the proposal stage as well as throughout the study. I don't think this will need a lot of words on formulating the proposal, just a good paragraph on what you would do in relation to patient/public involvement at that stage and why.

Hope that helps!

Allison

Maeve Kelsey

Maeve Kelsey Post 9 in reply to 7

• 26 January 2016, 12:03 PM

Dear Allison,

 

I am interested in writing about an international, Internet based survey which was carried out on patients with a rare disorder. This survey is already published and relied on PPI. The results were very insightful of the symptom burden associated with this disease and helped establish a new standardised symptom assessment form for this disorder.

Do you think this would be suitable for IP1.

 

Best wishes.

 

Maeve

 

Allison Worth

Allison Worth Post 10 in reply to 9

• 26 January 2016, 1:33 PM

Hi Maeve

Potentially yes - though if the study included PPI already, we'd be looking for evidence that you'd added substantial ideas of your own to enhancing the PPI strategy

Hope that helps

Best wishes

Allison

Maeve Kelsey

Maeve Kelsey Post 11 in reply to 10

• 26 January 2016, 1:43 PM

Thanks Allison,

I recognise the name of the patient advocate as one of the authors on the paper and I am familiar with this condition. There is no real reference to the role of PPI other than that.

Best wishes.

 

Maeve 

Gillian Wallace

Gillian Wallace Post 12 in reply to 7

• 26 January 2016, 6:56 PM

Hi Allison,

Yes, this does help. Thank-you!

Gillian

GS

Gibbi Sey Post 14 in reply to 12

• 2 February 2016, 11:23 AM

Dear All,

I have trouble see resources for cost calculation of PPI. Can anyone please guide me?

 

Gibbi

Allison Worth

Allison Worth Post 15 in reply to 14

• 2 February 2016, 11:36 AM

Dear Gibbi and everyone

There is a guide on the INVOLVE website here

http://www.invo.org.uk/resource-centre/payment-and-recognition-for-public-involvement/

This is of course aimed at UK researchers, but it will give you plenty ideas. I have to say, in reality it is hard even for us to get this level of resource for PPI!

Best wishes

Allison

GS

Gibbi Sey Post 16 in reply to 15

• 2 February 2016, 12:35 PM

Hi Alison, 

Thanks for the swift response. Very helpful. 

Gibbi

GS

Gibbi Sey Post 17 in reply to 16

• 2 February 2016, 1:41 PM

Hi Allison,

I am trying to calculate the cost. Do we have to show how we arrived to the cost or do we calculate the cost and just have a table that summarises the cost per activity?

Gibbi  

Allison Worth

Allison Worth Post 18 in reply to 17

• 2 February 2016, 2:41 PM

Hi Gibbi and everyone

Either a summary table or a paragraph explaining what activities you have costed, the amount for each and the total cost is fine.

Hope that answers your query

Allison