The standard view of this forum does not always work well with assistive technology. We also provide a simpler view, which still contains all features. Switch to simple view.
Allison Worth

Allison Worth Post 1

• 21 January 2016, 10:33 AM

Next week's lecture/tutorial

Hello everyone

For next week's online session (Thursday 28th, 6pm), I'd like you to contribute topics you'd like me to cover. This can be: anything you'd like to reflect on from your learning on patient and public involvement so far; anything that's not clear or you'd like more information about; anything from the Unit 2 lessons (which will be available on Monday) that you'd like me to talk about in person; anything from the Thought Discussions you think is worth discussing further. Just post your questions/discussion points here in the common room by Thursday morning and I'll go with the flow......

If you have a microphone (modern laptops usually have them built in), then I'd be very happy for you to speak during the session - you could ask your own question, or make a comment in response to the discussion. But if you feel shy, typing in your comments is fine! Hope you can join me next week

Best wishes

Allison

 

Gillian Wallace

Gillian Wallace Post 2 in reply to 1

• 27 January 2016, 9:41 PM

Hi Allison,

Unfortunately I cannot make it to tomorrow nights tutorial. 

One thing I would like to know more about is ways to engage the public in clinical research, for example ideas to catch attention of the public and highlight the importance of clinical trials without going down the traditional leaflets and posters route. To be completely honest, I have a clinical trials 'open day' at work in mind, and wondered if you have any experience of these sorts of events.

This is something which I am sure will be covered later on in the course, but thought it worth mentioning if you have time to talk about it tomorrow, and I will watch the tutorial recording. Or, I am more than happy to wait until the next tutorial to address this question, considering I cannot attend tomorrow evening.

 

Best wishes,

Gillian

Allison Worth

Allison Worth Post 4 in reply to 2

• 28 January 2016, 9:19 AM

Thanks Gillian, that's a good suggestion which I'm sure will be relevant to many of you. It will be covered in Unit 4, but I'm happy to talk a bit about it tonight.

Best wishes

Allison

Valeria Kovacs

Valeria Kovacs Post 3 in reply to 1

• 27 January 2016, 9:56 PM • Edited by the author on 27 January 2016, 9:57 PM

tomorrow's tutorial - my suggestions

Hi Allison,

I don't know if this is a silly suggestion, but as some of us are not located in the UK, where PPI is more developed, we have never experienced first-hand how PPI is applied in practice. Reading and videos are really helpful, but maybe if you could tell us like a "story", giving examples of your own experience, of how PPI was applied throughout a whole study or at different stages, it would be helpful in order to see the big picture and for sure, I would definitely remember your lively tutorials more than papers in the future big grin

Additionally, I would like to know your thoughts about what the future holds for PPI in Pharma. As regulatory authorities pose high demands in the design of studies that seek marketing authorisation and legal departments won't allow for information sheets and consent forms to be more "friendly" (which of course are becoming "booklets" given the experimental phase of the drugs), it is hard for me to imagine patients/public sitting at our meetings! 

Anyway, just personal suggestions wink

looking forward to tomorrow's lecture!

KR

Valeria

Allison Worth

Allison Worth Post 5 in reply to 3

• 28 January 2016, 9:22 AM

Thanks Valeria, I'm very happy to tell you some stories from my own experience and hope it brings PPI to life for you. I will also talk about PPI and pharma, as that is certainly one of the ongoing challenges for people like me....

Best wishes

Allison