The common room

Hello everyone

In last night’s lecture, I promised I’d flag up some resources about patient involvement in industry-led research and in clinical trials units. So here you are:

Evans BA, Bedson E, Bell P et al. Involving service users in trials: developing a standard operating procedure. Trials 2013; 14:219 http://www.trialsjournal.com/content/14/1/219

Jenner MK, Gilchrist M, Baker GC. Practical considerations in improving research through public involvement. Research Involvement and Engagement 20151; 3. DOI: 10.1186/s40900-015-0002-y http://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-015-0002-y

Hoos A, Anderson J, Boutin M et al. Partnering with patients in the development and lifecycle of medicines: A call for action. Therapeutic Innovation and Regulatory Science 2015; 1–11.  http://dij.sagepub.com/content/early/2015/04/24/2168479015580384.full.pdf?ijkey=BMyiC3ykhZNg5cd&keytype=finite

 From EUPATI – have a look at the case reports:

http://www.patientsacademy.eu/index.php/en/news/361-patient-involvement-in-industry-r-d-from-theory-to-reality

From INVOLVE:

http://www.invo.org.uk/posttypepublication/public-involvement-in-clinical-trials/

http://www.invo.org.uk/posttypeconference/changing-the-formula-working-directly-with-pharma/

Information from trials units and networks:

http://www.ctu.mrc.ac.uk/our_research/patient_and_public_involvement/

http://exeter.crf.nihr.ac.uk/node/170

www.crn.nihr.ac.uk/wp-content/uploads/primarycare/Breaking%20new%20ground%20in%20PPI.pdf

http://www.ncri.org.uk/wp-content/uploads/2015/09/Dragons-Den-AZ-poster.pdf             

Hope this helps!

Allison