Answer

Members of the public can provide a lay perspective on any aspect of a research study. They can comment on the value of the research; how easy it is to understand study materials such as lay summaries and patient information sheets; recruitment processes; data collection and analysis; reporting and public engagement. A member of the public with a specific health condition (and members of their family) has additional knowledge and understanding of the subject, based on their experience of illness and treatment: experiential knowledge. They can provide unique additional insights to inform all the above activities, but are likely to be more able than a general member of the public to help identify research priorities for their specific condition and help to interpret findings.

Last modified: Wednesday, 4 March 2015, 9:50 AM